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SUPPORT CIRCLE: A self-help group of the disabled in session
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Huddled together
in a tight circle, they make an unusual gathering. Sarat Jena is deaf
and dumb. Mita Swain is mentally challenged. Gagan Mallick is visually
impaired. Ratnakar Sahu is polio-stricken. That is not what makes the
meeting unusual. But the fact that they are discussing how enabled they
now are. They wax eloquent about their new-found vocations, celebrating
the fact that despite the odds, they could now stand tall and grasp their
destinies with their own hands.
"I feel so free," gushes Sahu who is all set to open a poultry
farm with a loan of Rs 7,000. Part of a self-help group in Ersama in Orissa's
Jagatsinghpur district, it hardly matters to him that he can only crawl
with his deformed legs. As he has learnt over the past few years, standing
on his own feet is another matter altogether.
Jena has put up a cow shed and is planning to buy two cows. Mallick
is growing betel vine. With nothing but the future in their minds, they
now wonder what had taken them so long to do what they are doing now.
The credit for their new-found confidence goes to a clutch of social
activists who have helped form the self-help group. And theirs is not
the only one. A dozen such groups have come up in Ersama and Balikuda
blocks. With hundreds of disabled people in the state waiting for a helping
hand, the expectations from these self-help groups are enormous.
It all started when international agencies like Action Aid set up base
in Orissa after the supercyclone in 1999. The NGOs were asked to identify
vulnerable groups in the worst-hit areas. It was during this process that
the disabled in Ersama and Balikuda were shortlisted, and then organised
into self-help groups. Action Aid provided the corpus fund from the Livelihood
Programme, sponsored by British funding agency, the
Department for International Development, under which the enterprises
for the disabled were set up. "This is a novel effort that raises
a lot of hope," says Smruti Mohapatra of Swabhiman, one of the NGOs
that is involved in the programme.
Unlike other self-help bands in Orissa and elsewhere, these groups have
a free and open style of functioning. There is no gender bias-men and
women are on an equal footing-nor is there any restriction on the categories
of the disabled who can join. All are welcome even those carrying social
stigma, like leprosy patients. In fact, the groups work on the basic premise
that the cross-disability factor, bringing people with various physical
impediments together, lends a feeling of oneness among them as they live
and work in a relatively less disparate environment. This also helps in
their integration into the mainstream much easier. "The cross-disability
self-help groups in Balikuda and Ersama are surely milestones," says
Blorin Mohanty of the Bharat Gyan Bigyan Samiti, a social organisation
that is working in the region.
The results are beginning to show. Swain, who is mentally challenged,
did not talk to anyone, even to her family members, earlier. But today
she is an active member of the group: she eagerly sticks out the guest
register to the visitors for their comments on the group. "We complement
each other," says Kalyani Khatua, who walks with a pronounced limp.
Some insensitive villagers still taunt her for her gait, but her standing
in the neighbourhood has never been higher. One of the founding members
of the group, Khatua owns a grocery shop, which she started with a loan
of Rs 20,000. Her earnings of Rs 50 a day is perhaps more than what any
one in her family makes.
As Sonali Patnaik of Swabhiman says, it is ultimately a question of
getting empowered. Budding entrepreneurs all, the members of the self-help
groups have a sense of purpose in their lives now.
It is a big achievement in a state like Orissa, which has been far from
sympathetic to the plight of the disabled: the state Government, as in
some other states, is yet to set up a commission for the disabled. A co-ordination
committee that was set up for the betterment of the disabled was dissolved
before it even met. Amidst such institutional apathy the groups have got
other tasks. They are trying to sensitise the public, like insensitive
bank officials, who refuse to entertain leprosy patients who want to open
accounts for fear of contracting the disease.
Like Jena, Swain and Mallick, the members of the self-help groups are
prepared not only to take on their physical and mental handicaps but social
prejudices as well. And overcome them all.
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